Rare Disease Research Websites
Rare Disease Day ® 2020
The main objective of Rare Disease Day is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as a public health priority.
1,545,661
$
720.00
Home - Lysosomal Disease Network
The Lysosomal Disease Network is an NIH-funded research network working to create effective treatments and/or cures for the lysosomal diseases, which are 70+ hereditary metabolic diseases. The Lysosomal Disease Network is headquartered at the University of Minnesota, with participating research institutions located fro
Not Applicable
$
8.95
The Guthy-Jackson Charitable Foundation
Information about Neuromyelitis Optica (NMO) Spectrum Disease
Not Applicable
$
8.95
Mysite
Hues for HOPE will celebrate the beautiful children affected by a rare, terminal condition and raise funds to accelerate treatment options for peroxisomal disorders (also known as PBD or PBD-ZSD).
Not Applicable
$
8.95
Polaris University
Polaris University is the only in-the-field Clinical Research Training Center in Atlanta. You'll work to improve tools and techniques, conduct tests to prove their effectiveness, and conduct ground-breaking clinical trials.
Not Applicable
$
8.95
