Orphan Disease Websites
Home Page
The RE Children's Project was founded in 2010 to increase awareness regarding Rasmussen's Encephalitis (RE) for the primary purpose of supporting scientific research directed towards a cure.
News
"OrphanAnesthesia" will prepare and publish concise recommendations for anesthesiologists as well as patients to help in planning and performing anesthesia in patients suffering from rare diseases. These recommendations will be peer reviewed readily accessible and reflect the best evidence available. Furthermore "Orpha
The Guthy-Jackson Charitable Foundation
Information about Neuromyelitis Optica (NMO) Spectrum Disease
All Greater Good Foundation Home Page
The Greater Good Foundation is dedicated to identifying and funding rigorous, cutting-edge research and practices by cultivating a collaborative research environment.
PHA Canada :: AHTP Canada
The Pulmonary Hypertension Association of Canada is a Canadian registered charity organization serving those whose lives have been touched by PH.
BluePrint Orphan - About
Rare Disease Corporate Advisory, Business Development & Commercialization: Global Patient Estimates, Pricing & Access Analyses
Alexion Pharmaceuticals, Inc |
Alexion is a global biopharmaceutical company focused on developing and delivering life-transforming therapies for patients with severe and life-threatening rare diseases.
Alexion Pharmaceuticals, Inc |
Alexion is a global biopharmaceutical company focused on developing and delivering life-transforming therapies for patients with severe and life-threatening rare diseases.
Confluence Pharmaceuticals - Home
Drug Development for Autism, Fragile X, orphan disease