Lysosomal Storage Disease Websites
Home
The purpose of this website is to provide information and education about Danon Disease to the public.
Not Applicable
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8.95
Fabry Disease - Focus on Fabry
A resource for patients, families and healthcare professionals about signs and symptoms, diagnosis, and management.
20,151,923
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8.95
Niemann-Pick Children\'s Fund, Inc | Niemann-Pick Type C Disease (NPC)
Niemann-Pick Childrens Fund, Inc. was organized in December of 2008 in order to raise awareness of Niemann-Pick Disease Type C and its affect on families in
Not Applicable
$
8.95
Home
The purpose of this website is to provide information and education about Danon Disease to the public.
Not Applicable
$
8.95
Little Miss Hannah – Fight against Neuronopathic Gaucher’s Disease typ
Hannah Ostrea's journey and fight against neuronopathic Gaucher's disease, an extremely rare and fatal life-limiting genetic metabolic disease. As a result of raising a medically fragile child with this rare disease diagnosis, I have become a mom on a mission for rare disease awareness, pediatric hospice and palliative
Not Applicable
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8.94
