Cystinosis Websites
Cystinosis Foundation - Founded in 1983 - Serving Families for Over 25
The ORIGINAL Cystinosis Foundation. We are a non-profit organization, with more than 34 years of International experience in supporting and educating families and the medical community through the dissemination of educational literature, funding research, and annual conferences.
Hide & Seek Foundation
The Hide & Seek Foundation for Lysosomal Disease Research. Hide & Seek is a community of people dedicated to finding treatments and cures for a devastating genetic condition called Lysosomal Disease., Health problems ? Want free medical help ? Ask your health related question now for FREE! Live medical specialists awai
RARE-e-CONNECT - RARE-e-CONNECT
Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical