Alstrom Syndrome Websites
Welcome | Joubert Syndrome & Related Disorders Foundation
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, & emotional support.
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8.95
Welcome to the Ciliopathy Alliance!
The Ciliopathy Alliance aims to improve the lives of everyone affected by ciliopathies - life-threatening and sometimes devastating conditions caused by defective or dysfunctional cilia.
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8.95
RARE-e-CONNECT - RARE-e-CONNECT
Secure multidisciplinary collaboration and knowledge sharing on rare diseases. For Healthcare Professionals and patients within Cyprus and abroad, large repository of medical centres in Europe and other countries with verified expertise in rare disease groups and rare diseases, Patient life stories, Continuous Medical
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8.95
